Hope everyone is well! I thought it was about time for an update on the past couple of weeks.. I've been working in the office a lot more, which is great!
I'm still having quite a lot of pain from my bum as it just can't heal! The doctors said we can only do what we are doing.. Keep on with the creams and starting antibiotics if I can feel it may get into another infection. It is an actual pain in the ass!
I saw my GI for my azathioprine monitoring bloods. I went through with my hubby this time, as he never usually comes. I spoke to him about the extreme exhaustion and dizziness/weakness. I had some sores at the side of my mouth which he noticed as soon as I went in, he said this is a sign of anaemia. We decided if my iron levels were low, we'd sort out an iron infusion ASAP.
He couldn't get any veins in my arm to play along (they never do!) so he went for the femoral stab! He was so gentle compared to some I've had, and he got it in first shot! He couldn't believe it when I told him a young Dr on the Emergency Assessment Unit had attemped my arms tons, my foot a few times and then my groin 5 very painful times before I told him I'd had enough as he was useless! He didn't get any blood out! My consultant made it look easy peasy though! He said he'd rush through the results as he thought I looked really pale and tired. Whilst we were going through my medication, I mentioned I've been taking B12 since last year each day, he said he'd forgotten to tick the box on the blood request form for that, so he went and did it straight away as from looking on the computer system, for some reason it looks like no one has checked my B12 levels since last year when I was advised to take it because it was low because of the crohns being in my ileum.
The next afternoon, I hear from him as promised. He said my iron stores aren't too bad at the moment but my B12 & folic acid was very low which would explain all of the symptoms I've been having with the exhaustion, dizziness, sore mouth etc He said I was was to have 5 B12 jabs in a 2 week period to boost the levels, and then I'd need to have one every 3 months to try and maintain it at a normal level. Even though I had been taking extra B12 vitamins my body wasn't absorbing it from food or the vitamins because the ileum does all that. He said the shots bypass using the gut so they work much better is crohn's patients. If anyone has any experiences of the B12 shots, I'd love to hear how they worked for you :)
So, I had my first shot on Friday morning. I woke up feeling abit sick anyway but put it down to something I'd eaten the day before. I went over to the GP and felt really odd, got the shot and got a taxi to get home. I tried so hard not to spew in the taxi but after keeping it down twice, it just came up so forcefully! I was so embarassed, I can't even tell you how much!! He managed to pull over so I could carry on being sick by the road. By this stage my brain felt like it was trying to escape out of my eye & I had blurred vision which meant a migraine! I kept apoligizing to the polish taxi man even though hardly anything got on his car as it went over me and a some in my bag (yuk! not sorted that yet whilst feeling queasy) anyway, I was throwing up all day Friday through to Saturday midday ish! I couldn't keep any antisickness meds (or anything else) but thankfully the vomitting has stopped, still feel very sick and queasy but managing to take pills to help that. I still have a terrible headache today too and still feel totally spaced out. I'm hoping by tomorrow for work. I was meant to go to a Supernatural Convention this weekend too, but have felt way too ill! A 3 day migraine sucks!! ugh!!
